A Framework For Person-centred Telehealth Research

  • Claudia C Bartz International Council of Nurses
Keywords: person-centeredness, telehealth, research methods, human subjects, diabetes

Abstract

This paper describes a framework for the integration of person-centeredness with telehealth research methodologies. The evidence base for telehealth is improving but research with human subjects continues to be necessary for confidence in the telehealth-related technologies and applications available now and in the future. To identify aspects of person-centred research, an exploratory review of telehealth research was followed by two phases of systematic qualitative analysis.All of the telehealth research reports considered had, as participants, people with diabetes (adolescents and adults). This diagnostic group was chosen to narrow the scope of the analysis to a manageable size. Diabetes is a worldwide disease and predicted to increase in morbidity and mortality in the next decades.A framework for the assessment of person-centred research was devised, based on three ethical concepts: respect, benefit and justice in the sense of fairness. The concepts are described with their related actions. With the application of these concepts and actions during the conceptualisation, design, sample accrual, interventions and data collection segments of telehealth research, the participants who are necessary to advancing telehealth research may have a better experience with the research process. Rather than researchers making assumptions about what people need, the participants themselves can contribute to the research design and data interventions. The study data resulting from the addition of person-centred applications may be more reliable (consistent) and valid (accurate), with participants having a sense of making an important contribution. Participants may also be more willing to continue to serve in future research.

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Author Biography

Claudia C Bartz, International Council of Nurses
Coordinator, ICN eHealth Programme

References

Bartz CC. Telehealth and person-centerd care: exploring the possibilities. Glob Telemed eHealth Updates Knowl Resour 2013;6:558-562.

Bartz CC. Evidence for person-centeredness in telehealth research. J Int Soc Telemed eHealth 2013;1(3):86-92.

Bartz CC. Evidence for person-centeredness in telehealth research involving people with diabetes. Glob Telemed eHealth Updates Knowl Resour 2014;7:39-43.

Miles a, Mezzich JE. The care of the patient and the soul of the clinic: person-centered medicine as an emergent model of modern clinical practice. Int J Pers Cent Med 2011;1(2):207-222.

Miln D, Sheeran L, Dryden T, Mileshkin L, Aranda S. Care Requirements of patients with advanced cancer within a specialist centre – moving to person-centered approaches. Int J Pers Cent Med 2011;1(1):167-176.

What is Personalized Medicine? Available at: http://pcpgm.partners.org/about-us/PM accessed 20 December 2015.

International Diabetes Foundation. Diabetes Facts and Figures. Available at: http://www.idf.org/worlddiabetesday/toolkit/gp/facts-figures accessed 6 November 2014.

United Nations Educational, Scientific and Cultural Organization. (2005). Universal Declaration on Bioethics and Human Rights. Available at: http://portal.unesco.org/en/ev.php-URL_ID=31058&URL_DO=DO_TOPIC&URL_SECTION=201.html accessed 20 December 2015.

World Medical Association. (2013). WMA Declaration of Helsinki Ethical Principles for Medical Research Involving Human Subjects. Available at: http://www.wma.net/en/30publications/10policies/b3/ accessed 20 December 2015.

U.S. Department of Health and Human Services. (1979). The Belmont Report. Available at: http://www.hhs.gov/ohrp/humansubjects/guidance/belmont.html accessed 20 December 2015.

Blackberry ID, Furler JS, Best JD, et al. Effectiveness of general practice based, practice nurse led telephone coaching on glycaemic control of type 2 diabetes: the Patient Engagement And Coaching for Health (PEACH) pragmatic cluster randomized controlled trial. BMJ 2013;347:f5272.

Carlisle K, Warren R. A qualitative case study of telehealth for in-home monitoring to support the management of type 2 diabetes. J Telemed Telecare 2013;19(7):372-375.

Buyssee HEC, de Moor GJ, de Maeseneer J. Introducing a telemonitoring platform for diabetic patients in primary care: Will it increase the socio-digital divide? Prim Care Diabetes 2013;7(2):119-127.

Van Dyck D, De Greef K, Deforche B, et al. The relationship between changes in steps/day and health outcomes after a pedometer-based physical activity intervention with telephone support in type 2 diabetes patients. Health Educ Res 2013;28(3):539-545.

Levin K, Madsen JR, Petersen I, Wanscher CE, Hangaard J. Telemedicine diabetes consultations are cost-effective and effects on essential diabetes treatment parameters are similar to conventional treatment: 7-year results from the Svendborg Telemedicine Diabetes Project. J Diabetes Sci Technol 2013;7(3):587-595.

Rossi MC, Nicolucci A, Pellegrini F, et al. Impact of the “Diabetes Interactive Diary” telemedicine system on metabolic control, risk of hypoglycemia, and quality of life: A randomized clinical trial in Type 1 diabetes. Diabetes Technol Ther 2013;15(8):1-10.

Kubota M, Hosoda K, Eguchi K, et al. Videophone-based multimodal home telecare support system for patients with diabetes. Diabetol Int 2013;4:52-59.

Kiage D, Kherani IN, Gichuhi S, Damji KF, Nyenze M. The Muranga Teleophthalmology Study: Comparison of virtual (teleglaucoma) with in-person clinical assessment to diagnose glaucoma. Middle East Afr J Ophthalmol 2013;20(2):150-157.

Kurji K, Kiage D, Rudnisky CJ, Damji KF. Improving diabetic retinopathy screening in Africa: Patient satisfaction with teleophthalmology versus ophthalmologist-based screening. 2013;20(1):56-60.

Berg M, Adolfsson A, Ranerup A, Sparud-Lundin C. Person-centered web support to women with Type 1 diabetes in pregnancy and early motherhood – the development process. Diabetes Technol Ther 2013;15(1):20-25.

Guo SH-M, Lin YH, Chen RR, Kao SF, Chang HK. Development and evaluation of theory-based diabetes support services. Comput Inform Nurs 2013;31(1):17-26.

Tavsanli NG, Karadakovan A, Saygili F. The use of videophone technology (telenursing) in the glycaemic control of diabetic patients: a randomized controlled trial. J Diabetes Res Clin Metab 2013:1.

Crowley MJ, Powers BJ, Olsen MK, et al. The Cholesterol, Hypertension, And Glucose Education (CHANGE) study: results from a randomized controlled trial in African Americans with diabetes. Am Heart J 2013;166(1):179-186.

Dy P, Morin PC, Weinstock RS. Use of telemedicine to improve glycemic management in a skilled nursing facility: A pilot study. Telemed E Health 2013;19(8):643-645.

Fischer HH, Eisert SL, Everhart RM, et al. Nurse-run, telephone-based outreach to improve lipids in people with diabetes. Am J Manag Care 2012;18(2):77-84.

Leichter SB, Bowman K, Adkins RA, Jelsovsky Z. Impact of remote management of diabetes via computer: The 360 Study – A proof of concept randomized trial. Diabetes Technol Ther 2013;15(5):434-438.

Miyamoto S, Henderson S, Young H, Ward D, Santillan V. Recruiting rural participants for a telehealth intervention of diabetes self-management. J Rural Health 2013;29(1):69-77.

Newton KT, Ashley A. Pilot study of a web-based intervention for adolescents with type I diabetes. J Telemed Telecare 2013;19(8):443-449.

Nuovo J. The impact of a diabetes self-management education program provided through a telemedicine link to rural California health care clinics. Health Serv Insights 2013;6:1-7.

Shea S, Kothari D, Teresi JA, et al. Social impact analysis of the effects of a telemedicine intervention to improve diabetes outcomes in an ethnically diverse, medically underserved population: Findings from the IDEATel study. Am J Public Health 2013; e3-e7.

Tang PC, Overhage JM, Chan AS, et al. Online disease management of diabetes: Engaging and motivating Patients online with Enhanced Resources- Diabetes (EMPOWER-D), a randomized controlled trial. J Am Med Inform Assoc 2013;20(3):526-534.

Trief PM, Izquierdo R, Eimicke JP, et al. Adherence to diabetes self-care for white, African American and Hispanic American telemedicine participants: 5 year results from the IDEATel project. Ethn Health 2013;18(1):83-96.

Turner JW, Robinson JD, Tian Y, et al. Can messages make a difference? The association between e-mail messages and health outcomes in diabetes patients. Hum Commun Res 2013;39(2):252-268.

Published
2016-01-08
How to Cite
Bartz, C. (2016). A Framework For Person-centred Telehealth Research. Journal of the International Society for Telemedicine and EHealth, 3, e16 (1-7). Retrieved from https://journals.ukzn.ac.za/index.php/JISfTeH/article/view/103
Section
Original Research